What is the policy of scientific dissemination of the work that is derived from the data obtained?
- One of the objectives of this portal is to disseminate the relationship between the molecular findings and the clinical variability of patients with primary tubulopathies. The scientific publications derived from the information obtained will be multicenter studies, with the collaboration of all participants who have included patient data at the base.
- If a doctor does not want his patients to be part of a specific publication, you can request it through the contact form.
- In each article, the research group of each tubulopathy in question will be included as main author (s) and as co-authors those who contributed more than 10% of the patients with this pathology or who actively help In the preparation and writing of the manuscript. If the collaboration is small, the name of the participant will be included in the renaltube equipment.
- By participating in this project by including patients in the database, the publication policy described above is accepted.